https://www.ohbaby.co.nz/forum/ Copyright (c) 2006-2013 Web Wiz Forums - All Rights Reserved. Fri, 01 May 2026 15:41:24 +0000 Tue, 06 Aug 2013 20:25:15 +0000 http://blogs.law.harvard.edu/tech/rss Web Wiz Forums 12.05 360 https://www.ohbaby.co.nz/forum/RSS_post_feed.asp?TID=43430 https://www.ohbaby.co.nz/forum/forum_images/web_wiz_forums.png https://www.ohbaby.co.nz/forum/ https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=43430&PID=5844646&title=research-study-undiagnosed-medical-condition#5844646 Author: TatianeYanes
Subject: 43430
Posted: 06 August 2013 at 8:25pm

Hi Susiq,

The survey will be open for another couple of weeks so you can still participate in the study.

Thanks
Tatiane
]]> Tue, 06 Aug 2013 20:25:15 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=43430&PID=5844646&title=research-study-undiagnosed-medical-condition#5844646 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=43430&PID=5844404&title=research-study-undiagnosed-medical-condition#5844404 Author: susieq
Subject: 43430
Posted: 04 August 2013 at 5:15pm

is it too late to do the study
]]> Sun, 04 Aug 2013 17:15:23 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=43430&PID=5844404&title=research-study-undiagnosed-medical-condition#5844404 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=43430&PID=5844339&title=research-study-undiagnosed-medical-condition#5844339 Author: TatianeYanes
Subject: 43430
Posted: 03 August 2013 at 4:06pm

Hi Everyone,

Just a quick note to say thank you to everyone who has participated in our study so far, we appreciate you taking the time to complete our survey.

The research project will be finishing up soon so if you would like to participate please click on the link below:

https://prodsurvey.rcs.griffith.edu.au/undiagnosed


Tatiane ]]> Sat, 03 Aug 2013 16:06:35 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=43430&PID=5844339&title=research-study-undiagnosed-medical-condition#5844339 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=43430&PID=5844338&title=research-study-undiagnosed-medical-condition#5844338 Author: TatianeYanes
Subject: 43430
Posted: 03 August 2013 at 4:02pm

Hi Susieq,

If you were never given an explanation for what caused your daughter's developmental delay then you are eligible to participate. We are keen to hear from as many parents as possible and with varying experiences so we have a good overview of the issues associated with not having a diagnosis.

Thanks
Tatiane]]> Sat, 03 Aug 2013 16:02:19 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=43430&PID=5844338&title=research-study-undiagnosed-medical-condition#5844338 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=43430&PID=5841402&title=research-study-undiagnosed-medical-condition#5841402 Author: susieq
Subject: 43430
Posted: 07 July 2013 at 8:48am

I have a 27 year old daughter who was only ever diagnosed as epileptic and developmental delay, but probably more than these
]]> Sun, 07 Jul 2013 08:48:46 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=43430&PID=5841402&title=research-study-undiagnosed-medical-condition#5841402 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=43430&PID=5841366&title=research-study-undiagnosed-medical-condition#5841366 Author: Tatiane122345
Subject: 43430
Posted: 06 July 2013 at 5:42pm

You are invited to participate in a research study investigating the experiences of parents raising a child with an undiagnosed medical condition. This study aims to understand the unmet needs of parents with the goal of improving coping resources and support available to families in similar situations. Individuals who are 18 years or older and have at least one child with a medical condition that has remained undiagnosed for more than 2 years are invited to participate.

Participation involves the completion of an anonymous online survey which should take approximately 30 minutes to complete. This study is being conducted by a Masters of Genetic Counselling student from Griffith University, Brisbane Australia, and will be conducted in accordance with the National Statement on Ethical Conduct in Human Research.

Please pass this information on to anyone who might meet the criteria for study.The survey can be found at:

https://prodsurvey.rcs.griffith.edu.au/undiagnosed

If you have any questions please contact:

Linda Humphrey
Principle Supervisor
Associate Lecture
Griffith University
Ph: +61 7 3735 7564
Email: l.humphreys@griffith.edu.au

Tatiane Yanes
Principle student researcher
Masters of Genetic Counselling
Griffith University
Email: tatiane.yanes@griffithuni.edu.au

Edited by Tatiane122345 - 07 July 2013 at 4:51pm]]> Sat, 06 Jul 2013 17:42:54 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=43430&PID=5841366&title=research-study-undiagnosed-medical-condition#5841366